Hello!
As you probably found this blog from my old blog, Everyday Jersey Girl, you saw I talked about being in a new season and outgrowing that blog. I will always be the Everyday Jersey Girl but right now it feels more appropriate to be writing about what is happening in my season of life and the two best words I could think of to describe this season are Wonder and Joy.
These two words I have been unintentionally thinking about for a while now; they both happen to be in a bible verse that has been resonating to me in so many way the last three (!!) years now.
I found this verse when I was going through a rough time dealing with my Crohn’s Disease. I have this exact photo set as my background on my phone, it is engraved on my iPad and I have it hanging in my office and in my bedroom. When you think about it….there IS wonderful joy ahead, you have to stay strong and be brave even in the most scary and unsettling situations.
Wonder and Joy….. all of the wonder and joy I have come to after struggles and struggles , its a relief to find even the tiny piece of joy when you are in the midst of a really rough struggle.
I have had Crohn’s Disease for five…that’s right FIVE years now. I have no idea where the time has gone and I still cannot really believe I have been living gracefully (as my mom would put it) for FIVE years. I have seen some really high highs (getting medicine approved, finding no inflammation where there once was and finding medicine that works, even for a short time) and some really low lows (at least 4 overnight hospitalizations, finding inflammation and finding I’ve failed FIVE medications, the tears, frustrations and hopelessness) but through it all, this verse has always come back to me… ALWAYS.
Living with a chronic illness is unforgiving and really really REALLY hard. Unless you, yourself, have a chronic illness, its terribly hard to explain and its even hard sometimes for people to understand what it actually is. I don’t always look sick and some days I have a ton of energy and I get a lot done, and other days I can’t get myself out of bed. These extremes frustrate me and make me angry that I can’t be like everyone else.
My support system is pretty amazing and they are always right there next to me for each doctors appointment, hospital stay, trip to the infusion center and to help me navigate this scary and sometimes dark unknown of having a chronic illness.
I needed to find a hobby because I have been feeling less than stellar lately (and by lately I mean the last 9 months) and blogging has always been on the backburner for me. I had a Xanga (remember that one?!) back in the day and probably a LiveJournal. Wish I could find those entries in cyberspace! Then I had a Tumblr which was like the anti-blog for 10 years (on and off) and then I found Blogger-first it was
Just Simply Elle for a year, then
Everyday Jersey Girl for four years and now,
Wonder and Joy.
My intention for this blog is to be able to share my season with you all in the cyberspace and to document this part of my life. I have a lot going on and as many photos I have, I think actually writing eh typing it out can somewhat therapeutic. I will try to be as honest and open as I can with these posts- some may be funny, some may be emotional be all in all it will be what my season in life really is.
I write how I speak and I use way too many exclamation points but I am only me, that is the only thing I can be. I’m silly, honest, emotional, curious, caring and about a million more things too. I hope you can join me in this season of my life.
Thanks for stopping by!
Gabrielle
